Hannah’s
Open Heart Surgery
Season’s Greetings,
Our eight year old daughter Hannah (Sweet Pea) was recently
diagnosed with Atrial Septal Defect (ASD) a congenital heart defect. It turns
out that the hole in Hannah’s heart is too large for her to be a candidate for
the non-surgical catheter-based procedure and so she must have open heart
surgery to repair a whole in her heart. Hannah is a beautiful little girl (both
inside and out). She is a straight-A student, and she is one of the most caring
and selfless children in the world. She loves to sing, dance, and practice
gymnastics. She enjoys reading and watching (mostly Barbie and princesses
themed) movies, and is a HUGE fan of Taylor Swift. Hannah has a younger sister,
two older brothers and a mother and father who all love her very much. The
thought of our precious little girl having to have open heart surgery is
terrifying for us. This invasive surgery requires that the cardiovascular
surgeon make an incision into Hannah's chest, cuts through all or part of her
sternum (chest bone) and open her chest cavity to expose her heart. Once her
heart is visible, Hannah will be connected to a heart-lung bypass machine (thus
stopping her heart), so that the surgeon can operate.
As our
family prepares for Hannah’s open heart surgery we are also experiencing an
extreme financial hardship and struggle through life without a vehicle. The
transmission went out in our can over a year ago and we’ve been without an
automobile every sense. This might not sound like a big deal to most people.
However without any source of public transportation it not only makes
maintaining employment a challenge, but it also makes day to day life very
difficult as well. We are forced to walk with the children everywhere that we
need to go (the grocery store, doctor’s appointments, etc.). Plus, as the cold
weather sets in it triggers Hannah’s asthma condition and while recovering from
open heart surgery this makes her health and safety is a real concern.
We are
reaching out to the public for help, because we simply do not know where else
to turn. We’ve contacted every organization, foundation and church that we
could find. However there does not seem to be any funding for our particular
situation. We’ve even tried a Go-Fund-Me page but unfortunately our network of
friend and family is very small so this too was unsuccessful. Hannah’s Christmas wish is to meet or talk
to Taylor Swift. This is a very sad and scary time in Hannah’s life (facing
open heart surgery) and as expected she if feeling somewhat overwhelmed with
everything. So her family is trying desperately to reach out to Taylor Swift
and ask her to have a video Skype call with Hannah or to make Hannah a
personalized video dedicating one of her songs to Hannah. This would help
Hannah’s moral so much and would help give her strength that she need to make
it through this tough time in her life and empower her to make a speedy
recovery.
Our family
also wants to raise awareness to congenital heart defects, in particular Atrial
Septal Defect. Hannah was originally diagnosed with having a small heart
murmur. We were told repeatedly that it was nothing to be concerned about and
that it would most likely heal itself. This was not the case, the hole is
Hannah’s heart is quite large and if it is not repaired while she is young it
will cause permanent and irreversible heart damage. Hannah’s new pediatrician
heard her heart murmur and ordered an ultrasound. The ultrasound came back
identifying Hannah’s Atrial Septal Defect. So we are encouraging all parents
who have children with heart murmurs to get an ultrasound to make sure that the
murmur is not sign of something more serious.
Thank you for taking the time to read about my
daughter’s upcoming open heart surgery and our family’s situation. To
learn more about Hannah and her family please visit the following links:
Hannah’s blog http://www.hannahsopenheartsurgery.blogspot.com/
Hannah’s Go Fund Me page:
https://www.gofundme.com/hannahs-open-heart-surgery
Hannah’s Facebook Care Page
https://www.facebook.com/Sweet-Peas-Care-Page-719081884935170/
Sincerely,
Larry Spain